Digital Nation

Developing a Personal Data Model for Scottish digital healthcare

As described in a previous blog digital healthcare in Scotland is in a bit of a guddle, lacking strategic direction and currently very poorly integrated.

Our upcoming ebook guide Digital Healthcare 3.0 is intended to contribute to this debate and help offer insights that can form a vision and roadmap for moving forward.

If we think of ‘Internet 1.0’ being the first early years of basic IP connectivity, simple email and static web sites, Web 2.0 being the era of social media then 3.0 refers to the current direction of an increasingly decentralized Internet.

The emergence of ‘dApps‘ is combining with the trend of decentralizing data, empowering users themselves to hold, own and control their own personal information, rather than having it stored in a central database owned and controlled by others.

Scotland’s opportunity is harness the global momentum and apply it to our own local needs in a very powerful way, both addressing our own IT needs while also cultivating an industry specialism with massive global growth potential.

It’s My Data

Electronic Health Records are the very pertinent example. The efforts to create massive single EHRs have proven noble in intent but broken in practical reality.

Apps like Healthy Me from digi.me are an example of the new paradigm and how the decentralized approach tackles the issue by distributing the workload and privacy control to the users themselves.

Initiatives like MyData, of which digi.me plays a key role, are setting out to develop the global movement that will establish the framework for adoption of this approach, with a mission to develop a human-centric paradigm striving for a fair, sustainable, and prosperous digital society, where the sharing of personal data is based on trust.

As FutureScot reports at a recent parliamentary hearing on Scottish digital healthcare this approach was called for:

“What we should be aiming for it a central digitised record that the patient has ownership of. And I think any of the professions that are arguing for increased access to records, increased ability to write into records, we need to be mindful that we need to take patients with us on that journey and consent is absolutely essential.”

Developing a Personal Data Model

As they describe “Our aim is to build a balanced relationship between individuals and organisations”, highlighting the key dynamic required to translate the ideal into a working national scale system, notably the integration with existing healthcare systems and practices.

So the goal of Developing a Personal Data Model for Digital Healthcare in Scotland will be to identify:

  • What legacy applications would need to be integrated with? How would patient data be synchronized between them?
  • How would this fit into / update Scotland’s related privacy legislation?
  • How would it be rolled out as a national program and become part of modern healthcare practices?
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